Showing posts with label Temodar. Show all posts
Showing posts with label Temodar. Show all posts

Monday, November 14, 2011

...here goes everything.

Chemo, round 3 begins tonight. Actually, I can take that little pill anytime I want. I've taken all 5 of the others. I'm already exhausted just thinking about it. But I'm so optimistic.

My platelets are 127,000 (up from a low of 34,000 last week). My throats a little scratchy, but it's hard not to notice every little thing that happens to my body.

I was thinking about my cancer-coworkers today. There are a couple of them. They all deal differently. Some everyone knows about, some talk to me but keep it pretty hush hush. How did I join this club, I wondered today. The cancer club. No one wants membership, but once you join... it's like the mob - you're apart of the family for life.

Sunday, November 13, 2011

...is your brain made out of mush?


I'm turning into an old woman. Already! I have started making lists to remind myself of things I need to buy. Currently on my list: slippers, rubber gloves, face wipes, milk and... damn I don't have the list in front of me and I can't remember anything else on it.

It's been a long time since I updated, but I've decided I'm going to work on being better about that. I have a lot to say. At least I can provide commentary and maybe help someone who is newly diagnosed.

Next week, assuming my platelets cooperate, is chemo week. I do 5 days on, 23 days off. I was supposed to be on Temodar last week but my platelets were too low (34,000!).

Advice of the day: Get a good wig. It makes you feel like a super star. Human hair makes all the difference. I have two, Annabelle and Sasha. I love them as much as you can love an object that represents what you're going through.

Ps. this summer when I was home for radiation, I painted that table in my picture lime green!

Saturday, June 25, 2011

...you have an inoperable brain tumor.


Welp, I guess that post in April was ominous.. or just wrong. Your head did hurt that bad.

Shortly after my last post, my dr ordered an MRI which revealed a brain tumor. Inoperable, but surgery was necessary to create a drain for the CSF that was building up, causing really bad headaches and vomiting. After a month of living in the neuro ICU at Columbia Presbyterian, I am home, doing radiation and chemotherapy (Temodar).

The tumor is an Anaplastic Astrocytoma, they think. Specifically they are calling it "high grade."

I'm going to start writing in this blog again as an outlet, and hopefully to connect with other people online going through this journey.

I am treating at MSKCC and Columbia Presbyterian.